Patient & Public Representative

East Midlands


Email address:

Claire Robotham

Community Member


Claire, from the East Midlands, has Usher Syndrome type 2 (Deafblind), she is also a partner, mother and has volunteered with guide dogs since 2013.

Claire was born deaf and attended main stream schooling. This has equipped her with many skills needed for an inclusive world, as Claire is also an advocate for the Molly Watt Trust and is keen on sharing the awareness needed to keep today’s society an inclusive and accessible one.

As Claire’s eyesight deteriorated due to Retinitis Pigmentosa in her early 20s, she got her Guide Dog Minnie in 2013 after many years of freedom and independence as a partnership Minnie retired in 2020. Claire’s current Guide Dog Jacqui who has taken over the reins from Minnie, supports her daily while Claire also works as a Community Fundraising Relationship Manager, for Guide Dogs.

Claire has experienced many hurdles and overcome them, she is experienced in public engagement and media. As a patient at Moorfield’s and a participant of the 100,000 genome project, she brings an understanding of patient experience & genetic data as well as personal interest. She was a carer for her mother, who battled breast cancer over 8 years; something that taught her a lot about the hospital care system and recognising the importance of patient and family inclusion in all aspects of treatments and care.

Claire is not afraid of overcoming her disability and she regularly does so, proving that disability is not a barrier if accessibly and inclusivity is incorporated. She has worked with the NHS making them aware of accessibility flaws on simple tasks such as booking appointments and advised on improvements. She has also completed several endurance challenges to raise funds for a number of charities. Claire strives to make todays health care system inclusive and accessible for all.

Additional HDR Midlands Team Members

Firoza Davies

Patient & Public Representative
East Midlands

Mr Colin Monckton

Director of Performance and Information
Nottingham University Hospitals NHS Trust

Rachel Caswell

Senior Healthcare Analyst
Midlands Analyst Network Lead Strategy Unit

Kathie McPeake

Macmillan Living with Cancer Programme Manager
NHS Lincolnshire Integrated Care Board